Planning a family trip can be a very stressful event, especially when taking kids away from home for a long period of time. For parents Kim and Tony, this stress level was taken to the extreme for this was no pleasure trip. Thanksgiving and Christmas celebrations were cut short to prepare for a three-month trip to Minnesota in order to have care for their son, 8-year-old Anthony. It would not be the last time the family needed to take the trip.
After suffering a concussion in the summer of 2013, Anthony was diagnosed with having a rare incurable genetic condition, Cerebral X-linked Adrenoleukodystrophy as well as Addison’s Disease. These life-threatening conditions required Anthony to receive an immediate bone marrow transplant. Thus, a trip for this Pennsylvania family to the University of Minnesota Amplatz Children’s Hospital was necessary.
During these three months of assistance that included chemotherapy and a cord blood stem cell transplant, Anthony’s hearing was lost along with much of his vision. Currently, he is dealing with physical, occupational, and speech therapy to help adjust to his loss of sight and hearing. His multiple medications keep him from being as active as he would want to be.
Happily, this video game, sports-fanatic, pro wrestling enthusiast has been able to return home to Pennsylvania for a time to be with his entire family and a supportive community who proudly sport the blue bracelets that say, “We’ve Got Your Back.” Hopefully, you can help us have Anthony’s back too.
Your donation can help us share a bit of happiness, hope, and comfort in the lives of Anthony and families like his. Please consider a donation to Five Fathers Children’s Charity.